Thanks again for all of the support we received at the 2nd Annual JBT Regatta at the Winnipesaukee Yacht Club on June 18th. We had a huge turnout, not only with the sailors who raced in the Regatta and the 200+ people who came out for the BBQ & Auction, but the dozens of friends and colleagues who sent us incredibly generous donations. We raised over $45,000 for The Cure Starts Now Foundation!!
A HUGE thank you goes to our great friends, the Milligan’s. Yesterday’s Milligan Memorial Golf Tournament raised another $14,500 for CSN – as well as $14,500 for the Babcock Scholarship Fund. INCREDIBLE!!
Please know that you all are truly a part of something special — CSN is a wonderful foundation powered by families that have endured the same heartache that DIPG delivered us – We will end this devastating disease, no matter how long it takes! Please know how appreciative and sincerely thankful we are for your support … It means the world to us and we are so proud to be making this impact in John’s honor.
Yesterday, we were all Heroes.
At the 2nd Annual JBT Regatta our community of suppport RAISED OVER $45,000 for The Cure Starts Now!!!
This is AMAZING!
We are forever grateful for all the love and positive energy that you, our incredible support system, have given us. We are so proud to be contributing this $45,000 from our NH Chapter of The Cure Starts Now in memory of our son John to fight DIPG and find a cure for other families.
Thanks to everyone that came to the WYC to race, relax and enjoy the afternoon. And to all our donors and high bidders – you have made a difference!!
It was an honor to present the 2nd Annual JBT Perseverance Award to Don Roper, a man who has shown so much courage and positive spirit through so much adversity. Don, you are an inspiration and everything this award represents.
We have photographs from yesterday’s event that we will be posting soon. However, WE WOULD LOVE TO SEE YOUR PHOTOS. Please send along your pictures to firstname.lastname@example.org.
Thank you all,
Jesse, Alison and our families.
Summer is here!! This Saturday, July 18th, our community will continue to fight DIPG at the 2nd Annual JBT Regatta & Auction in support of The Cure Starts Now Foundation, to be held at the Winnipesaukee Yacht Club in Gilford. ALL ARE WELCOME!!
Registered boats will set sail at 11:30am (registration 8-10, skippers meeting 10am). Live music, Auction and Award Ceremony festivities to commence at 4pm. Bring the whole family to cheer on the sailors, enjoy the music, take a dip in the lake and bid on great local auction items! Light food will be served, BYOB.
If you are interested in sailing, supporting the cause with an auction item or just making a donation, please email Jesse at email@example.com. Please know that The Cure Starts Now Foundation is making incredible progress in the pursuit of a cure for DIPG and we are committed to fight for ours and many other families.
Saturday will be an incredible day for our community to come together to help to ensure that the New Hampshire Chapter continues to be an influential player in the fight against DIPG. We thank you all for keeping us and this cause close to your heart.
See you on Saturday!
JBT over Welch Island
Two years ago Tuesday, June 2nd 2013, John was diagnosed with DIPG.
On July 18th our community will continue to fight at the 2nd Annual JBT Regatta & Auction, to be held at the Winnipesaukee Yacht Club.
Please save the date and email Jesse at firstname.lastname@example.org if you are interested in sailing, supporting the cause with an auction item or just making a donation.
The Cure Starts Now Foundation is making incredible progress in the pursuit of a cure. We have the World’s best Pediatric Cancer Doctors working together and the DIPG Collaborative is prepared to fund close to 3 Million in research this year alone.
Our family is one of many in this fight – We have committed to never give up, just like John. Please be there on July 18th: It will be a great day, everyone is welcome and we need your help to ensure that the New Hampshire Chapter continues to be an influential player in the fight against DIPG. We are making a difference … Together!
As always, we are thankful for your support and the amazing Community that we call home. Love to all!
Jesse & Alison
You have probably heard about Lauren Hill, the 19-year-old girl fighting DIPG in Cincinnati. ESPN did a Tom Rinaldi piece last night, her story was on the Today Show this morning and on all the news programs earlier tonight. Lauren has selflessly committed her remaining days to giving a voice to all children fighting this horrible condition. Her idea was to grow awareness and funding for DIPG research through her final NCAA college basketball game – She plays for a Division III School and her last game was yesterday … She scored 4 points and there were 20,000 tearing eyes in attendance. It was special, it was all for Lauren.
Lauren has issued a challenge to all — Spin around 5 times and try to make a lay up with your non dominant hand. This challenge symbolizes what it’s like to have DIPG and try to play as she did on Sunday — If you miss, you pay $10 to The Cure Starts Now Foundation. After you try, you need to challenge 3 – 5 people to do the same.
This challenge is already growing to a massive level — Lebron James has committed to trying it, as well as a couple NFL quarterbacks, national personalities and beyond …. And this is only one week into the challenge.
Lauren and The Cure Starts Now needs your help to help this gain momentum – Sooner the better. Our request is that you do the challenge yourself, make the donation and put it up on Twitter or Facebook to spread the word … #layup4lauren. This is going to spread like wild fire, which will get us closer to preventing children and their families from enduring the unthinkable reality of DIPG.
Thanks guys, we appreciate your willingness to help — Together with Lauren, we will make a difference.
Jesse & Alison
We wanted to share a dancing memory with you all as we continue to create new memories.
On Friday, November 14th at Interlakes High School at 6:30 PM our friend Kathleen Burke is raising money for our New Hampshire Chapter of The Cure Starts Now Foundation — She will be nothing short of a star as she takes part in “Dancing with Community Stars” in John’s memory.
Kat has teamed up with an amazing professional dancer and on the night of November 14th as they dance like stars the audience members will cast votes with dollars — Each dollar equals 1 Vote. The dancing team with the most votes will receive 50% of all the money raised (for their charity) and all the other dance teams / charities divide up the remaining funds raised. We’re very excited and proud that Kat chose to dance for John and our cause, so please take a moment to support her efforts and get your tickets soon, they won’t last long!
Please make a donation in advance at Kats donation page: Donate to the Event.
You can buy tickets to the event here: Tickets to the Event.
Thanks everyone — We are doing well and appreciate the continued support.
Come one come all!
This Saturday (August 2nd) is the first annual JBT Regatta, hosted by the Winnipesaukee Yacht Club. Come put up your sails up for a fun day of racing and cruising! Registration for the sailing race is from 8am-10am Saturday morning at the WYC. All sailors are welcome. Skipper’s meeting is at 10am sharp!
All are welcome to join in the fun after the race ~ there will be a BBQ, Awards Ceremony and Auction from 4pm – 7pm, at the yacht club located at 45 Dockham Shore Road in Gilford. BYOB.
All proceeds will go towards the NH Chapter of The Cure Starts Now.
We hope you can make it. Click: CSN Regatta & Auction Donation Form if would like to donate auction items or make a monetary donation to the event.
Many Thanks to WYC!
If you have any questions about the event, please email email@example.com
John loved football. Before he turned one he would raise his hands above his head smile and giggle and we would all shout “touchdown”. As he grew older the love of football grew within him. He had so much fun playing in the backyard and in the youth flag football league. He would practice and strategize every move on the field, knowing, “If you can touch it .. you can catch it”. In the last two seasons of football, John memorized the names, mascots and logos of all the NFL teams. He has spent the last couple months sewing patches of each teams logo with his Aunts to make a blanket for his dad. We will hold these memories forever.
We are grateful to have received so much love through sharing our memories and journey with you and are so humbled by all your condolences. We ask you to take a moment to share your fondest memories of John with us. Through a comment on this post, feel free to tell us of times that made you laugh and smile. Whether memories with JBT, the family and friends, or even reflecting on the memories we have shared through this website. If you would like to add pictures, please email them to firstname.lastname@example.org
and we will include them in the JBT, Family and Friends Pics