Today I am 7! We’ve spent the last couple weeks celebrating. While we’re taking things day by day around here, we have been having fun with a full house. The whole family is here and I’ve continued to work hard on my artwork. My Aunt Kat and I are making a movie right now based on a book I wrote called “The 3 Spies”. Stay tuned, we might do a screening.
We had an awesome family party on Sunday, some cool animals came to the house, including a hedgehog, chinchilla and some guinea pigs. My friends at school had a party for me today too … We had pizza and cake and I got in a little trouble shooting cake at my favorite teachers – I’m a pretty good shot with a plastic spoon!
Today was a good day … Love you guys.
We made it back from Memphis late last night . . . Although it’s nice to be home, the news from Judy’s is not good.
John had an MRI on Monday and our fears of progression were confirmed by the Doc yesterday. This tells us that the symptoms we’ve been seeing over the last 6 – 7 weeks are tumor related and will only continue to get worse.
Please know that we plan on filling the upcoming months with nothing but love & joy. Our main focus is to keep John as comfortable as possible, and to keep life as normal as we can for him and his two little sisters. We will all get through this together.
We sincerely thank everyone for the thoughts and prayers you have sent our way over the last 9 months – We know this love and support will continue and just want you to know that it means the world to us.
All of our love.
This past weekend we had a nice relaxing weekend at home. I spent most of my time working on my art projects. I am working on drawing a picture of a train, once I finish drawing it out on the canvas I’ll paint it. And I have been writing a lot of stories, one story is about the train I’m drawing, there is one about Abigail and the Zoo, and another about Football. I like to read out my story as someone writes it down for me. Then I type it into the computer.
It has been a busy week so far. I’m finishing up all my Valentines, I have been working really hard on them. I can’t wait until we share them all in school.
Enjoy the rest of the week.
Today was awesome, we went to Boston with our buddy Fish to see the Bruins play the Oilers.
I got to sit right on the B’s bench for pregame warm-ups … These guys are huge and fast – A bunch of the guys said hi and Zdeno Chara even gave me a puck!
Then we went up an elevator all the way to the top of the Garden … our seats were in the Bruins Alumni Box! We sat right next to John “The Chief” Bucyk and met Willie O’Ree, Eric Healy and Kenny Linseman too … really cool.
The Bruins won 4 – 0 … They fought hard and played a great game. I was happy they won and I even got in a quick nap in between the 2nd & 3rd periods. Steve Leach made all this happen for us … we are so thankful for his kindness. Thank you very much puck hog – It was a day we’ll never forget!
We realize its been a while since our last post, let’s get you caught up.
Thursday was Elizabeth’s 1st Birthday, she’s getting so big! We were very fortunate to have the family around yesterday to celebrate the big occasion. We took advantage of having all the Godparents here by Baptising the kids at the Gilford Community Church … thank you to Michael for making it happen on such short notice.
John lost his first tooth yesterday morning and the tooth fairy came through last night. This tooth has been wigglin’ for a while, so we were all excited when it finally came out.
The last month has been tough… symptoms have continued to develop and have lead John back into taking a steroid to help contain the swelling. We go back to Judy’s in three weeks for his next MRI. Although things are not great, we continue to stay optimistic and strong.
John is in good spirits and extremely focused on his art. We’ve included a handful of his pieces from the last couple days for you to check out. We are so proud our boy and remain hopeful that a miracle is waiting up around the corner.
We are just “resting” at the Memphis airport … our flight is delayed but we are hopeful to get home tonight. Sounds like we missed an awesome snow storm, can’t wait to get home and start digging out!
John had a case of the flu on Christmas Day and we’ve since noticed some changes that make us a little nervous: nasal voice, off-balance, hard time hearing and his eyes were a little off as well … these things were obviously a concern to us coming into this next round of imaging.
John had a MRI at Judy’s yesterday and we met with the doctors this morning…. the tumor does not appear to be any bigger, which is great news. However, there is some swelling in there which could explain some of the things we’ve been seeing. This swelling can be from cancer cells regenerating or cancer cells continuing to break down, only time will tell but we feel strongly that it’s the latter.
We leave Memphis optimistic that the swelling is just a side effect of Radiation and the Chemo doing it’s job, nothing more. Thank you for your thoughts and prayers … we are so thankful for your continued love and support.
Jesse & Alison
Sorry we have not been in touch over Christmas, it has been a fun filled crazy week! Santa came and while he brought my sisters and I lots and lots of goodies, he also brought the flu that has spread like wildfire through our house! On the up side though, we have not let that deter us from having a wonderful time with our family.
We celebrated our first Christmas at our house. It was really nice being able to spend the day in our pajamas. After Christmas we headed north to Bear Rock Lodge where we spent time snowmobiling and sledding. We also went bowling! It was really fun. Now we’re home to celebrate the New Year!
We head to Judy’s tomorrow for a check up. Well keep you posted. Please keep the positive thoughts and prayers coming!
Our family wants to wish you all an amazing 2014 filled with love and laughter.
All my love
Hope this will make you laugh!